- President, Női Egészségért Alapítvány, Hungary
A 40-year-old woman who has been living with endometriosis for the past 14 years and whose life completely changed after a 7-hour surgery. Today she is a happy wife and, thanks to IVF treatment, also the proud mother of two beautiful children: the 8-year-old Abigel Zora and the 4-year-old Zakariah Lenard.
She is also the President of the Női Egészségért Alapítvány, which is the only official NGO in Hungary to raise awareness and educate about endometriosis and support women suffering from the disorder. She has started the Foundation in 2010 after being diagnosed with endometriosis and she has been advocating for women’s health ever since. Learning to live with the disease has undoubtedly been a great challenge, but now she has made it her mission to support endometriosis patients and their families. Her driving force is her dream that not a single woman has to go through the same struggle she experienced due to endometriosis.
She and her foundation is one of the consortium partners of FEMaLe. The Finding Endometriosis using Machine Learning project (FEMaLe) will develop and demonstrate the Scalable Multi-Omics Platform that converts multi-omic person population datasets into a personalised predictive model to improve intervention along the continuum of care for people with endometriosis. They will design, validate and implement a comprehensive model for the detection and management of people with endometriosis to facilitate shared decision making between the patient and the healthcare provider, enable the delivery of precision medicine, and drive new discoveries in endometriosis treatment to deliver novel therapies and improve quality of life for patients.
Adrienn is also the organizer of the EEL Masterclass places in Budapest at the request of Dr. Attila Bokor
Two of the many great achievements of her Foundation in Hungary:
– the diagnostic delay has been reduced to 4 years in Hungary
– rules and laws have been changed in Hungary (Hungarian Endometriosis Guideline signed by the Secretary of State for Health; tax reductions for women affected by endometriosis)
She believes in the power of collaboration that “Together it’s easier”.